Hello, gorgeous human - welcome here!
I have created this page as someone who has journeyed through endometriosis and chronic pain. I am also a listener, a story teller, and someone who has spent a lifetime (so far) telling other’s stories through video.
Through my work as an advocate for endometriosis and chronic pelvic pain awareness I have become overwhelmingly aware of the need for not only education and answers, but conversation between - and for - people with uteruses, menstrual cycles, puberty, ovarian cysts, diagnosed or undiagnosed endometriosis and adenomyosis… the list goes on.
This is not an endeavour to be popular, forever solve gynaecological diseases, or create income. This is a personal project that I know I have the tools and skills to facilitate. I know there are other sites and socials sharing other’s stories - I think the more, the better!
My greatest hope: that short stories, audio, or video from those willing to share their experiences will mean someone else may feel more self-love or validation in their own silent and lonely journey. Perhaps someone will discover (from someone else’s story) something about a symptom they also had in their early years they had no idea about (like I did).
This site - and stories shared by this site - are not medical advice, and they are not a replacement for therapy of any kind. Please see the support page for some links that have been helpful for me, reach out to family or friends, your GP or ER, or your local help line if you feel in danger of any kind.
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VOICE MEMO
VIDEO
Scroll down to continue to the submission form.
Want to add your story to Endo Advocacy Lab.?
There are a couple different avenues you can choose from.
Be Part of Endo Advocacy Lab.
Simply send through an introduction, or (if you feel ready) send through your story files. Please make sure you watch the corresponding videos above about techniques, word counts, and file types, and then use the form below!
Security Transparency
This form is using Squarespace storage and Google Drive storage. Both are not HIPPA or GDPA approved.
As soon as I have access to your written, audio, or video file I download it and store it on a password protected external hard drive. Once your story is created into a social media post I delete your files from both Squarespace and Google Drive, as well as my hard drive. I keep your name and email in a spreadsheet so I remember who’s been featured within this project, but all other files are not kept after uploaded to social media.